After losing our twin boys to incompetent cervix at 18 weeks, I'm taking my health and my future into my own hands. I received a bionic cervix through the transabdominal cerclage procedure. This baby WILL come home with us!
The tape strips were "supposed" to "fall off" at 2 weeks. Phhhh... I've been peeling them back little by little because my OB said if they weren't off by my appt this Tuesday, she will "help" them off. No way, lady!
As I tear each one off, there is a zinging for about an hour, and now intense itch has begun. I believe there's a total of 10 strips and I have 4 completely off, the rest are folded in half, ready to be ripped. It doesn't hurt, per se, but it's very tender and itchy.
How far along? 13w2d, a peach! Weight gain/loss: -8. I have been throwing up nonstop.. Grrrrr Sleep? Still uncomfortable from the surgery but I sleep at about 2 hours a stretch. Best moment this week? NT Scan showed a perfect baby! Movement: Maybe a little, but I don't want to get too excited Food cravings: Popsicles and Jello :( Bad week..... What I miss? A clean house What I am looking forward to? The vomiting to STOP. It's somehow getting worse, not better. Milestones: Officially in second trimester!!!! What I'm nervous about: Going back to work tomorrow and not throwing up on anyone/anything.
Please hold me and our little one in this pregnancy. Please let it be boring, uneventful, and amazingly dull. Please let me avoid the inside of L&D for at least 25 more weeks. Please keep my blood pressure low, my uterus calm, and my blood sugar stable. I will watch 500 hours of boring TV and organize my spices every day if it means a healthy baby in mid-March.
Oh man, I've been bad about this the last couple of weeks! Sorry, bean!!
How far along? 12w1d, a plum! Weight gain/loss: Down 4 pounds. Thank you, morning sickness! Sleep? Been sleeping lots! Best moment this week? Seeing the heartbeat again and being reassured that our baby made it through the surgery! Movement: Strangely enough, I am feeling a little vibrating, fluttering feeling way down low. I hope that's you! Food cravings: This week I guess it was pizza. What I miss? My energy What I am looking forward to? NT scan next week! Milestones: TAC surgery complete (this baby's going nowhere), almost out of 1st Trimester! Next goal is 18 weeks. What I'm nervous about: Nothing in the next few weeks. Praying for smooth sailing.
Sorry it's been so long. Neither sheer agony nor any kind of complication or drama has prevented me from updating, which is good news! I've been quite well, just resting and being relaxed. My mom came home with me after the surgery (thank you, Mom!) which was a huge Godsend. She was able to get me out of the house every day (NO driving for 2 weeks for me, even though I broke that rule today). Nothing major, but I at least got out to civilization at least once a day, and to my OB for a follow-up. She also kept dishes washed and she vaccuumed and let the dogs in and out. She also cleaned up my barf when I threw up all over the kitchen floor while it was still wet from her mopping it. I love my mom.
So, recovery from surgery has been pretty much what I expected. Thursday was surgery, Friday I rode in a car for 4 hours (with 1 break to walk and eat), Saturday rested, then Sunday flew back home. I was adamant about getting through the airport without a wheelchair and I did great. No wheelchair or assistance!! The pain is just plain weird. It feels like my abs are in a constant state of doing a sit-up, very sore. When I touch my stomach near the incision, it's completely numb. It feels like there's an invisible pillow tucked in there. I talked to the nurse at my OB and she said she had a c-section and a tummy tuck and 7 years later, she still has no feeling in that area! I don't know why, but I'm wondering if feeling will ever come back for me there. It's totally fine for now, but it definitely does feel weird. Other than the numbness and soreness, I have some random sharp twinges that take my breath away, but no constant stabbing pain or anything. I basically walk around hunched over like I'm 99 years old. It's very attractive. It also makes me realize how weak my back is! I have also had some bladder issues, I'm waiting for my urine dip to come back to see if I developed a bladder infection from the catheter. Dr. H gave me an IV of antibiotic to prevent this, but I alllllways seem to get bladder issues. It's probably just me. Lots of cranberry juice has helped tremendously already.
EDITED to add: I have since recieved the results and there is NO infection. Turns out I was having bladder spasms, and was told to lay off the acidic drinks such as cranberry and tea. It's helped a ton since I stopped drinking those!
It's now been 9 days since surgery. I'm starting to feel like my organs are back in the right places. About 4 days ago, I took my last Percocet (I still have about 40 pills in the bottle) and have gone down to just Tylenol. 2 Percocet at a time is for when you want to sleep, 1 was maintaining the pain during the day those first few days. If I took 1 right now, it would probably have the effect of 2 since my pain is so much less. Today, I cheated and DROVE to Target (about 15 mins one way) and did just fine. I should have eaten something first, because I started to feel a little hot and lightheaded, but the drive went just fine. I treated myself on the way out to some Chik-Fil-A sweet tea and those little nuggets on bun things. I forget what they're called, but YUM!
I'm rambling. Since my thoughts are so scattered, I'll bullet point some tips that have helped me:
Absolutely, 100% REQUIRED is a travel pillow of some sort. I fortunately found one just in time at Target the night before. Mine was $2.50 at the dollar bin and has the styrofoam beads inside. That type in particular is great, because I can press it against my stomach and massage the beads, which in turn massages my stomach and feels SOOO good. You will need it when you stand up, when you cough, sneeze, laugh. It takes a lot of pressure off. I am still using it 9 days later. I also use it when I sleep at night to give a little support under my side-belly. If you have a nice flat tummy you probably won't have to do that, but I have some extra that pulls my incision when I lay on my side. It's also amazing in the car.
You will have a funky discharge after the surgery. Mine looked like Cheetos rubbed inside my pad. It was gross! I finally realized it was probably iodine because Dr. H said he basically used loads of it. I had some clotty mucousy stuff, too, which was a rather disturbing find. By the time I left the hospital, I just used some liners (bring some) and was able to forego those a couple of days later.
Pregnant or not, you will most likely have an ultrasound the next day before you are discharged, so be emotionally prepared for that room if you haven't seen one for awhile. The tech will give you a picture of the beautiful band holding your cervix iron tight!!!
If you're traveling to Dr. Haney, make sure to bring AT LEAST $40 in cash for parking - it was expensive, and cash only, but there were Chase ATM's inside the hospital. Try to get there at least an hour early, it was hard to find where to go, and parking was hard to find - it is a VERY busy campus!
If you're seeing Dr. Haney, be prepared to do a lot of waiting. Don't take the times they give you very literally. Just use that time to relax and mentally prepare and talk with your husband alot. He will be short on conversation the next few hours! We waited quite a bit, the surgery was a little late (about an hour) and discharge was really late (4 hours after we were told). Waiting for a bed out of recovery also took FOREVER. L&D was packed. Just be prepared, its a big place, lots of patients.
MOVE, MOVE, MOVE!!!!! It helps the anesthesia out of your body and speeds healing. If I am lazy for awhile it's harder to get up, but if I stand up and walk around the house at least once an hour, it helps a ton.
Be prepared for constipation. Dr. H prescribes Colace, but just pick it up and start taking it. I went 5 days and it was getting really painful. I was eating a lot, too, which of course compounded the effect. Have some Milk of Magnesia on hand in case the Colace isn't working. I was stressed for awhile that it wasn't going to happen!
Go ahead and have some cranberry juice on hand - it will help your bladder avoid infection or recover. It did wonders for me.
Start saying NO to obligations and really take time for yourself. I thought I was going to be SO bored recovering at home, but my mind is kind of blank right now and the exhaustion comes and goes. I haven't even been reading at all, or needing to keep "busy." Just sitting around petting my dogs and watching Season 6 of Grey's Anatomy has been all I've needed.
Oh yeah, Dr. H's TAC patients are able to "donate" a fat sample during the surgery that goes to research ovarian cancer - just to give you a heads up to think about it. You have to sign the form to accept or decline the donation. The research topic may change in the next few weeks, but when I was there, it was fat for ovarian cancer research. I told them they could take it all, and the Dr. said that was what everyone said! LOL.
DO NOT overpack. Your husband will be stuck with whatever luggage you bring so pack light. I used my own toiletries (I ended up not taking a shower, but you may. I was too skeeved by the incision still). I didn't use any of my own clothing or socks until I was discharged. Your pillow and a brush, toothbrush and some panty liners are about all you need. When you are discharged, make sure to get lots of comfy stretchy pants to wear home. If you have maternity pants, pregnant or not, they are very comfortable and give extra support.
If you want, give your husband a list of "chores" to do while you're out. Mine was super bored for about 4 hours, but he had his laptop (there was great free Wi-Fi) and he updated my blog and message boards. Also make sure he's okay on snacks, but there is no eating in the waiting room. Keith went to the food court and got a wrap or something that held him over. He was able to sleep in a cot next to my bed, so all in all, he was pretty taken care of.
Sorry it's taken me so long to do this; I've been travelling and trying to recover and get as much rest, while moving as much as possible. I'll go day by day, and hope to break it into portions that make sense. I'll do my best to warn you if things get graphic or gory. It will.
Thursday Morning - TAC Day!
We drove in from a friends' house, who lived about an hour away in Northern Indiana. Traffic was not NEARLY as bad as we thought it was going to be, so it only took about 45 minutes. The University was on the southern end of the city, so no crazy Chicago traffic was necessary. The University of Chicago is a beautiful, beautiful place. The old, Gothic buildilngs are polar opposite of the modern, glass interiors and I wish we had had more time to look around and take some pictures. It took us awhile to find parking, but we ended up finding the parking garage (at nearly $40 for 2 days). We walked through the walkway to the DCAM building, found suite 2C where I was to check in, and waited in the Food Court until our 9:30 meeting.
At 9:30 am, we met with our Pastor's father, who happens to live in Milwaukee and also happens to be a Pastor himself. He gave us some great words of encouragement before the surgery that helped keep me calm and reassured that I was being taken care of. It was very beneficial.
At 10:00 am, we went over to Suite 2C to check in. The sweet girl who checked us in was quite the chatterbox, and it turns out we had the same last name, with different spellings, she joked that maybe we were related? She was African American, but hey, you never know! She made us feel really comfortable. She gave Keith 2 pages of paperwork to read and sign, gave him a 4 digit code to check my progress on the monitor, and told us to sit tight and she would walk us back when they were ready for us. The monitor was pretty cool. Keith had to wait in a waiting room with lots of other families, and there was a monitor that tracked where each patient was by their code. It would say, "7643 In Waiting, In Pre-Op, In OR, In Recovery," etc. Pretty cool.
Nothing could have prepared me for the cattle drive that was the University Hospital surgery center! They do it in waves with multiple people checking in at once. I was called back with 3 other women and we parted with our families, left all our belongings with them, and walked to the Pre-Op area. There I was put in a chair with a curtain and was asked a series of questions, she took medical history. Then I was asked to give a urine sample and she did a pregnancy test. Then she told me to shut the curtain, change into the gown, socks and a hair net and let her know when I was done. She gave me a garment bag to put my stuff in, labeled everything, then started the IV. It hurt like a B but it was over pretty quickly. It was the most painful thing until recovery. LOL. I got lots of arm bands, then once I was settled, she let Keith come back and wait with me until the OR was ready. which was supposed to be at noon. The Pre-Op area was packed, there was a butt in almost every chair, at least 20. The anesthesiologist came in, asked some questions. For some reason, I had it in my head that it was going to be a spinal, but she assured me it was general anesthesia, which was a relief to me. We met with a barrage of "Residents" aka Nervous-but-Trying-to-be-Confident Mini Doctors who were quite redundant to me and basically asked the same series of questions each time.
Dr. Haney was supposed to meet with us in Pre-Op before the surgery. We waited and waited, and eventually I heard one of the residents say that he was held up in the clinic, and that we should go ahead to the OR. Keep in mind, these "Residents" were about my age if not younger. At times, it felt like I was an extra on Scrubs. I said goodbye to Keith and made the walk to the operating table, hopped up, they strapped me in around my legs and arms and gave me some oxygen. Dr. Haney came in and apologized profusely. He said over and over, "THIS was NOT supposed to happen. I wanted to meet you beforehand, they got a little excited to begin." He re-explained the surgery, patted my leg a few times, and asked if I was ready.
The anesthesiologist told me to think of a vacation place and I was out in about a millisecond. Apparently Dr. Haney met with Keith for about15 minutes when I came out of surgery, and he said that everything had gone well. When I woke up in Recovery, I just felt plain weird. The room was buzzing with movement, there were tons of beds lined up in a row, and there was a nurse at the end of my bed with a rolling laptop waiting for me to wake up, I guess. There was a radio blaring. The guy next to me was talking incessantly and there was a radio blaring - I just wanted all the noise to stop so I could sleep, but I felt like no words could come out. I was too weak to talk, but my mind was moving. I kept drifting in and out of sleep, and Keith came shortly after. He said the surgery took awhile, about 1.5 hours, and that he had been waiting 2 hours since I was put in Recovery to see me. He nor I are not sure why it took so long, maybe I took awhile to wake up?
At that point we waited for a bed in Maternity, which was apparently overflowingly full. I didn't get a bed until after 8 pm. Of course, too late for food. I was starving!!! So, a very nice orderly rolled me into Maternity - I was the LAST person out of the recovery room! I met with my nurse, who was great. I had a pump of pain meds that I could push every 8 minutes. It was pretty good stuff.
Overnight - Thursday into Friday
This could almost qualify as a day unto itself. I was woken at 10, 11, 12 for vitals. I had to wear these very stylish white leg hose along with leg pumps that help with circulation. At 4 am, I was supposed to lose my catheter, stand up and sit down into a rocking chair, and lose the IV and the pain pump. They did cap the IV, I got the catheter out, and I started on oral pain meds (Percocet). However, I was so incredibly nauseous that I was not able to get up to sit in the chair. Gross alert! I threw up a ton of ginger ale, so I was restricted on the oral meds for awhile... Dr. Haney came around early in the morning and checked on me and apologized again about not meeting with us before the surgery. A couple of hours later I was able to stand up and walk to the restroom, but not without assistance. It was excruciating, I'm not going to lie. It took full minutes just to get up and out of the bed, and each step was very painful. I was finally able to order breakfast at 7:15, it came at 8:00, and I had a few bites of eggs and some toast and Jello or something of the like. Since I kept that down, I was able to take some Percocet. Immediately I felt relief and exhaustion and fell asleep for quite awhile. TIP: A guest tray for Keith would have been $15 but the person who took my order told me how much of each thing I could order, and I was able to get enough food for both of us. He also had a cot to sleep in, I forgot to mention that.
Friday - Release Day!
I felt like I was in there FOREVER, but really it was such a short time. The nurse told me that the more I moved around, the better I would feel, so I tried to get up about 2-3 times per hour, walk to the restroom or just around the room. We had lunch, and were waiting until 1:00 when we had a sono appt, then we'd be released. Well, we waited, and waited....and waited. Finally at 2:30 the nurse came back and apparently they were backed up, but a "Transporter" would be here for me soon. Finally someone showed up around 3 to wheel me to a completely different building for an internal sono to ensure the TAC was in the right place and the baby was doing well. We got a 4D photo of the baby, which was really cool. We could see the white glowing TAC band on my cervix. It was very cool! The sonogram itself was less than 5 minutes, so very quick. We were then wheeled back to the room to finish the release procedure.
I had to wait for a Resident to write me a prescription for Percocet, do my checkover and receive a Rhogam shot. That all happened pretty quickly, then we just had to wait for a transporter again, who wheeled me all the way to the parking garage to our car!! THAT was service.
Unfortunately I don't have my pics with me right now, but I will post as soon as I can. Baby was punching and kicking their little arms and legs and we got to see the little nub that will turn into a boy or girl part. We both think it's a girl, so we'll see. H/she was measuring ahead at 10w2d!!!!!!
My sono appts have been so clinical, between the cyst on my ovary (turns out it was a corpus luteum and is shrinking) and looking at my cervix, this is the first sono that we got to see the baby for more than 15 seconds. My cervix was almost 5 cm, but from experience, we know it's made of mush, and the consistency is much more important than the length. It also turns out I have a slight previa. Grrr... But the placenta is posterior, so I will hopefully be able to feel baby MUCH sooner! At almost 18 weeks with the twins, I only felt bubbles and flutters, since I had placentas on the front AND the back wall of my uterus.
One thing that stung me deeply was seeing "Gravida: 2" on my chart. My first thought was, "that's my baby killing track record." Ugggh... I haven't been able to stop thinking about my boys since then. They will always be a part of this little one, which is good and bad. I don't want to hold this one to a standard that they have to take the place of 3 children... I know that's crazy, but darnit, I am just so crazy emotional right now.
Lastly, my surgery is less than a week away!!!!! I can't believe it's gone this fast.
Thoughts and prayers would be greatly appreciated.